E6: You cannot create experience: Stories of transformation through co-creation.

Friday, 4th May
13:15-14:30

Part One:

IKONE’s goal is to improve the quality of care by facilitating collaboration between patients and healthcare, together with patient experts. Bernhoven, with the ambition for a full-scale transformation,
was the first hospital to use IKONE’s patients included transformation program by co-creating and really undergoing the patients experience. The program focusses on equivalent contact with patients at an organisational level, and the process from head to heart into tangible thinking and action.

After this session, participants will be able to:
1.Understand the value and necessity of cooperation with patients at organisational level in hospitals
2.Gain insight about how to work together with patients and how this can re-energise employees.
3. Demonstrate where a transformed hospital meets the needs of patients living in the 21st century.

Anne-Miek Vroom, Founder & Director IKONE Foundation, Medical Sociologist, Patient
Mariëlle Bartholomeus, Medical Director and Neurologist at Bernhoven Hospital, Uden

Part Two:

EX-Center is a Swedish National Knowledge and Rehab Center for patients with multiple extremity deficiencies – a national expert-team where a caregiver and a patient organization together share the principal patronage.

Part of the employed expert team themselves have multiple extremity deficiencies and have a central role in the planning and design of care programs. EX-Center started in 1994 and has accumulated a broad experience in treatment of adults and children. Our philosophy is to run a sustainable rehabilitation with person centered care. We want to share our experiences of building a partnership in which patient organizations, non-profit providers and the county council (health care payer) designed care processes and create value for patients and their families.

After this session you will learn:

• How to build effective (re-)habilitation for a specific patient group by a patient organization and a health care provider working together in equal terms.
• How role models in healthcare make a difference.
• How to prevent the proximity principle and public procurement from affecting vital specialist care

Christina Ragnö, Occupational therapist, BSc, EX-Center, Rehabcenter Sfären, Bräcke diakoni.
Marie Wikström, Coordinator, EX-Center, Föreningen för de Neurosedynskadade (FfdN), (Swedish Thalidomide Society, NGO)