S7: When Experience Lead – Shaping Better Care Through Patient Stories and Leadership
Friday 21 November 2025 | 11:30-13:30
Format: Presentation
Stream: People
Part One: Your Lived Experience Story Can Change a Whole System
When people share their personal experiences from interacting with the health system, they contribute their knowledge, expertise, and insights into their care. This information enriches a diverse data pool used to inform healthcare design, delivery, and improvements. Storytelling based on lived experience, supported by NSW Health’s Clinical Excellence Commission (CEC) storytelling resources, plays a crucial role in helping people effectively contribute this data.
Respectfully leveraging lived experience stories provides a powerful, human-centred method to drive and enhance safety, elevate quality care, and foster continuous learning and growth within the CEC and NSW Health. Integrating stories, with learning from lived experiences at its core, enables the CEC to foster human connection, facilitate collaboration through shared experiences, promote deep reflection, and spark innovative perspectives from the human side on how care is delivered and received. Connection to story is essential in promoting a person-centred approach, nurturing a culture of safety, excellence, and compassionate care.
Tania Arnott Clinical Excellence Commission; Australia
Robyn Smith Clinical Excellence Commission; Australia
Part Two: Youth-Centered Design: Empowering Nigerian Youth for Advocacy and Co-Creation in Transforming Public Healthcare Systems
This session showcases the innovative youth-centered design methodology employed by the WeNaija Community Impact Cohort to transform healthcare systems through advocacy and community-driven solutions. Adapted from the principles of human-centered design, this approach equips youth with skills to identify and address healthcare challenges in their communities. Participants are trained in advocacy, Gemba walks/analysis, and co-creation processes to ensure interventions are locally relevant and sustainable. Through capacity-building and collaborative efforts, the cohort has tackled issues like maternal health, substance abuse, and the utilization of primary health centers, achieving measurable outcomes and systemic improvements. Delegates will gain actionable insights into implementing youth-centered design approaches in diverse settings, enabling youth to lead transformative health initiatives globally.
Oghenefejiro Chinye-Nwoko Nigeria Solidarity Support Fund; Nigeria
Part Three: Youth-Centered Design: Empowering Nigerian Youth for Advocacy and Co-Creation in Transforming Public Healthcare Systems
Accelerating Adopting of VBHC and Patient-Reported Measures in the Allied Health Professions Session description Discover how Allied Health Professions Australia’s (AHPA) pilot program, in partnership with the Patient Experience Agency (PEA) and supported by the Transport Accident Commission (TAC), accelerated Value-Based Healthcare (VBHC) adoption in allied health practices. This session demonstrates the effectiveness of a discipline-agnostic program for fostering non-clinical change through tailored learning and coaching, a structured integration of Patient-Reported Measures (PROMs and PREMs), and personalised support in driving meaningful, systemic change. By comparing the performance of Control and Active groups over time the pilot demonstrated the impact of interventions provided to the Active group in accelerating VBHC adoption. Key outcomes include a 14.9% improvement in PX Maturity, fivefold increases in patient engagement, and faster scaling of meaningful patient-practitioner conversations focused on outcomes that matter to patients. This session is essential for allied health professionals, policymakers, and healthcare leaders seeking innovative, practical approaches to transform care delivery and scale VBHC adoption sector-wide.
Bronwyn Morris-Donovan Allied Health Professions Australia (AHPA); Australia


