Thursday 28 March
13:15 – 14:30

B4: Living well with dementia – coproducing care for vulnerable patients

Part A: Improving coordination: Improving care. Supporting people with dementia in the community

Sharing the learning from Focus on Dementia improvement programme who have been prototyping and testing models of care coordination for people with dementia living in the community. These models are supporting people at all stages of their dementia experience, from diagnosis through to end of life care. Improvement methodology and approaches have been fundamental to this project as have the involvement of people with dementia, their carers and staff. The learning from this work is transferable to other conditions and care settings, supporting people to live well in their communities for as long as possible, avoiding crises.

After this session, participants will be able to:
1. Understand models of care co-ordination in the community and how this is supporting people with dementia to live well.
2. Learn from practitioners who are involved in Focus on Dementia Improvement Programme and testing care coordination model in practice in order to understand transferability of approach to other conditions and communities.
3. Gain ideas on how to use care coordination approaches in practice.

Lynn Flannigan, Improvement Advisor, Healthcare Improvement Scotland; Scotland

Part B: Dementia: You don’t have to be the boss to be a leader

In UK, 25% of inpatient beds are occupied by someone with dementia, and clinical outcomes are significantly worse than those for people without dementia. In 2017 the Royal Free London set about opening our first dementia friendly ward, built on patient-led, evidenced-based design principles. Using our revolutionary grassroots dementia leadership educational tool (“CAPER”), our journey towards dementia-friendly explores issues around leadership, joy, environment, and asks the question: what does the term “dementia friendly” really mean?

After this session, participants will be able to:
1) Understand the impact of the hospital experience on people living with dementia, their relatives and the staff who look after them, based on local and national data from England
2) Using improvement science and patient stories, learn specific and actionable tools and strategies to become “dementia-friendly” which you can use in your own place of work, understanding the potential impact of these on both quality and cost of care, patient and staff experience
3) Understand the features of “specialist” and “generalist” approaches to the challenges and opportunities of dementia care, and the merits of each, including implications for spread

Danielle Wilde, Group Lead Dementia, Royal Free London NHS Foundation Trust; England