Patient Representative, Society Personalised Healthcare

Dayenne is born with a rare congenital heart disease. Besides her job as advisor, she also is active as a co-founder and board member of Hart4Onderzoek; the only patient driven charity that aims to raise (crowd)funding for scientific research in rare genetic and congenital heart diseases in adults and adolescents. The focus of Hart4Onderzoek lies on small-scale research proposals, projects or/and ideas of young investigators. Patients and researchers cooperate in innovative projects that aim to improve quality of life of patients, and strives to contribute to a more inclusive society.