Director, IKONE; Netherlands

Anne-Miek Vroom is a pioneering medical sociologist and founding director of IKONE, a non-profit foundation dedicated to advancing human-centered transformation in healthcare. With over 20 years of experience in driving change alongside patients and professionals, and her personal journey with the rare disease Osteogenesis Imperfecta, she fosters meaningful partnerships with patients and healthcare professionals. Supported by her dedicated team of experts by experience, Anne-Miek develops and implements strategies that harness patient narratives to generate valuable insights. This ‘insightship’ strengthens scientific understanding and fuels transformation in healthcare and beyond.

Central to IKONE’s mission is IKOcreate, a learning platform and toolbox that empowers organizations to seamlessly integrate patient co-creation into their processes for deeper insights and lasting impact. Guided by Albert Camus’ words, “You cannot create experience, you must undergo it,” Anne-Miek champions inclusive transformation and is a sought-after keynote speaker at conferences worldwide.