Thursday 22 May 2025 | 11:00-12:15

Format: Workshop

Stream: People

Content filters: Co-presented with patients, service users or carers

PART ONE: Co-production is key to achieving a better community. Can reaching, teaching and engaging families really be as easy as ABC?

A child’s health is dependent on their parents’ ability to provide a healthy start. The choices parents make are impacted by their knowledge and experience but strongly influenced by fear, deprivation, isolation and access. What if we could target and teach new parents what they needed to know? What would their engagement and co-production look like? What if we could connect them and build up support community networks? Living and working in a deprived area of North London, we saw the opportunity as health professionals to co-produce a parent education and peer support programme. The initiative, ABC Parents, aims to Achieve a Better Community exemplifying patient involvement, lived experience, co production and partnership working centred around reducing health inequalities. We will take delegates on a compelling journey of true collaboration. We will challenge them to review if, when and why they should have patient involvement and commit to greater collaborative working.

In this session, participants will:

• Appreciate the simplicity of engaging local parents and working together to improve parent education, peer support and access to resources.


• Explore meaningful practical partnerships they can develop to better address the challenges their families encounter.


• Commit to at least one improvement to their coproduction and partnership working.

Akudo Okereafor ABC Parents, North Middlesex University; England

Lucy Robin Child Health Community Champions Lead, ABC Parents; England

 

PART TWO: Patient Trainers in co-production for improvement

Over the past two years we’ve been working alongside patient partners to design a ‘Co-Production for Improvement’ programme. These partners now take the lead on delivering this training to teams across and beyond the organisation. In this interactive session you will hear from patient partners about how this training came about, their experiences, what is covered and key outcomes. We have run 3 cohorts of this programme, supporting over 20 teams to work with patients, service users and community colleagues to make improvements to services together. The programme has changed and matured over time, and we will share our learning and give you the tools to implement this in your own organisations. This will be a patient partner led session, supported by our participation team.

In this session, participants will:

• Understand the infrastructure and support required to co-design an improvement training programme.


• Understand how to support patient partners to lead and deliver training programmes for improvement.


• Take away tools to begin to design a similar programme suitable for their own settings.


• Gain an insight into the difference made when QI training programmes are co-designed and co-delivered with patients, people, and communities.

Natalie Royston Solent NHS Trust; England

PART THREE: Different perspectives: A patient led peer review panel for improvement projects

It is common practice to have academic papers peer reviewed and it is equally important to have the view of patients. We have established a Patient Improvement Peer Review Panel which provides project leads and teams the opportunity to discuss the patient perspective and incorporate this into improvement plans. From this, many have been inspired to work more closely with their patients in ongoing improvement. In this session, we will share the evaluated outcomes and framework from hosting the panel. There will be an opportunity to gain insight into the panel through our patient partners who will explain how the process works, give examples of projects presented and the impact this has had. We will share an example of the panel and the experience of the project leaders through a video, which will be accessible beyond the session.

In this session, participants will:

• Learn how the patient peer review panel has evolved and matured by being patient led


• Understand the value and the evidence in patients meeting with improvement leaders to discuss findings and future plans.


• Learn how to incorporate a patient review panel alongside other areas of patient and public involvement in quality improvement.

Colin Barnes Hampshire and Isle of Wight Healthcare Foundation NHS Trust; England

 

PART FOUR: Engage to elevate: designing research with patients and care partners to improve our understanding of safety

Engagement of patients and care partners is endorsed by the World Health Organization as an important strategy for improving healthcare safety. Due to their constant presence during the healthcare journey, patients and care partners have unique insights that can be leveraged to better understand safety gaps and identify improvement opportunities. Despite being a source of experiential knowledge and experts in their care, patients and their care partners are not often included in improvement efforts and patient safety research. In this session, we use the work from two studies to illuminate how to design research to learn from the patients’ and care partners’ experiences to elevate our understanding of patient safety. We also advocate for greater attention to patient and care partner engagement in research. Further, we provide examples that improvements in healthcare cannot be accomplished without patients and care partners in all aspects of the research or improvement process.

In this session, participants will:

• Explain current literature about patient and care partner engagement in patient safety.


• Describe strategies to engage patients and care partners when designing improvements and/or research.


• Apply the lessons from the methods of the two presented studies to one’s own context

Laura Pozzobon University Health Network; Canada

 

PART FIVE: Empowering voices: Transforming quality improvement with meaningful patient and carer involvement in a London Acute Trust

Have you heard statements like “Patient voice matters” or “All the improvements we made did not improve patient experience”? Ensuring that patient input leads to sustainable improvements is a common challenge. This interactive session, co-presented with patients and carers who were part of the core team, will explore how to effectively incorporate patient and carer voices into quality improvement projects. You’ll learn from presenters’ experience co-designing a sustainable process and framework at an acute hospital in London. Discover the journey, challenges, and lessons learned in creating meaningful patient involvement that truly enhances care. Don’t miss this opportunity to gain practical insights and strategies for successful patient-centred improvements.

In this session, participants will:

• Explore practical strategies for co-designing processes and frameworks.


• Appreciate the power of meaningful involvement of patients and carers in QI initiatives.


• Mitigate possible challenges faced in a co-designed project with patients and carers.

Cheryl Levy King’s College Hospital; England

James Norris Patient/Carer, King’s College Hospital; England