W4: Workshop 4 – Patient representation and lived experience – Breaking down barriers


Monday 30 October | 15:00-16:30


The workshop is open to any attendee who wears a patient/lived or living experience/consumer representative hat on.


The aim of the workshop is to cover:



  • Introductions

  • Call to action re: engagement in the conference

  • Introduction to the online forum (the Forum discussion group) 

  • Sharing hopes and expectations for the conference

  • Discussion of true partnerships with consumers/people with lived and living experience – what does that mean and how might that be demonstrated in this conference


This workshop will provide the starting point for consumer and community collaboration throughout the International Forum, which will include:



  • Having a meeting place in the exhibition space for networking, to share experiences and build relationships.

  • Hosting an online forum (the Forum discussion group) where consumers and community members attending the conference (in person or online) can share their hopes and expectations, insights from the conference sessions and examples of true partnerships with people with lived and living experience.

  • Insights shared by consumers and community members will be a part of the final conference session and will inform planning for the International Forum Brisbane 2024.


Our aim is for the voices of people with lived and living experience and consumer representatives to be heard, their presence to be visible and their contribution meaningful in this important event.


The terms we use


Language is a powerful tool. No single set of definitions can describe how every person experiences their health and wellbeing, or how they define themselves. We acknowledge the diversity of preferences and know that not everyone will agree with the terms we have chosen. It is always our intention to be inclusive and respectful.


Consumers – People with lived and living experience of health conditions, care, harm and recovery including carers, family members and supporters.


Community – People with an interest in improving the health system, including potential health service users and volunteers.


Engagement – Working with consumers and community members to listen, collaborate, partner, inform and create change.


 


Alison Coughlan, Health Issue Centre (HIC), Australia


Laila Hallam, NSW, Australia


Sophy Athan, Euroforce Music, Australia