A6: Working with people and communities

Thursday 11 April 2024 | 11:00-12:15

Format: Workshop

Stream: People

Content filters: Co-presented with patients, service users or carers; Features discussion of community led projects, including those outside of health and care

PART 1: Partnering with people: making lived experience key to innovation strategy 

Working with people with lived experience brings invaluable insights and is essential to ensure interventions meet the needs of service users and, ultimately, quality and safety in healthcare. The ‘Working with People and Communities Statutory Guidance’ reflects this, supporting active involvement, highlighting benefits and considerations.

This session will provide an opportunity to meet and hear from Lived Experience Partners and involvement professionals, to explore involvement that influences strategy, with practical examples from the Health Innovation Network who recently co-developed an Involvement Strategy and recruited Lived Experience Partners (Band 7 paid role, equivalent to Project Managers). Using liberating structures, delegates will then consider how this can translate to their own organisations.

As a result of this session, participants will be able to:

  • Understand the benefits of involving people with lived experience within health and care systems, including at strategic levels

  • Learn about the innovative approach of employing Lived Experience Partners in the UK’s NHS in recognition of their expertise

  • Explore practicalities, such as inclusive recruitment to support applicants from diverse communities, and how to support individuals to influence change 

Aurora Todisco Health Innovation Network, England

Catherine Dale Health Innovation Network, England

Faith Smith Health Innovation Network, England

Sophie Lowry Health Innovation Network, England


PART 2: Ourcare: co-designing the future of primary care with patients and the public 

The needs, values and preferences of patients and the public should inform healthcare policy yet too often these important perspectives are left out of discussions about healthcare reforms. We will review our large national effort to engage the public on the future of primary care in Canada. We will describe the deep dialogues we conducted with randomly selected members of the public in five regions of the country and our collaboration with community organisations to understand the perspectives of marginalised communities. We will share the reaction of policy-makers to our unique approach to public engagement and reflect on how attendees can adapt the approach to their context.

As a result of this session, participants will be able to:

  • Describe how diverse members of the public can be meaningfully engaged in deep dialogue around complex health system challenges

  • Discuss strategies for integrating the views of marginalised communities in public engagement

  • Reflect on how principles and approaches to patient and public engagement can be applied in your setting to inform health policy

Tara Kiran St Michael’s Hospital & University of Toronto, Canada