B2: Meaningful consumer involvement in care

Monday 25 July 2022 | 13:20-14:35


Format: Presentation
Stream: Population and Public Health
Content filters: Co-presented with consumers, service users or carers


(Part One): Meaningfully involving service users and carers in quality improvement work


This session will be discussing an exciting new initiative to develop meaningful service user and carer engagement within quality improvement work at Central and Northwest London NHS Foundation Trust. All work is co-produced with service users, carers, and staff at the Trust.  


Delegates interested in improving co-production within their areas can learn from the work and create more meaningful working relationships between service users, carers, and clinicians.


Sarah McAllister, Central and Northwest London NHS Foundation Trust; England


Sandra Jayacodi, Central and Northwest London NHS Foundation Trust; England


Geetika Singh, Central and North West London NHS Foundation Trust; England


Lucy Plamer, Central and North West London NHS Foundation Trust; England


(Part Two): Partnering with the woman who declines recommended maternity care


Refusal of recommended maternity care can be a confronting issue for women, midwives, and obstetricians with clinical, legal, and ethical implications. 


This presentation describes the development and implementation of co-designed, evidence-based resources to support informed decision-making, respectful care, and clinical, legal, and ethical safety when the woman declines recommended maternity care.


Lyndel Gray, Patient Safety and Quality Improvement Service, Clinical Excellence Queensland, Queensland Health; Australia


Bec Jenkinson, University of Queensland; Australia


Rebecca Kimble, Clinical Excellence Queensland, Department of Health (Queensland), Royal Brisbane and Women’s Hospital and Queensland Children’s Hospital, Clinical Excellence Queensland, Department of Health (Queensland), Royal Brisbane and Women’s Hospital, University of Queensland; Australia 


(Part Three): Co-designing person-centred comprehensive care planning across the care continuum


Models of healthcare have traditionally been episodic, and diagnosis centred. In an era of increased chronic illness and multi-morbidity, there is a clear need for health care to transition towards integrated, person centred and goal-oriented care. However, involving consumers in care planning decisions and aligning this with consumers’ values, needs and preferences across the care continuum and clinical specialties is operationally challenging. 


This session will demonstrate how health services can co-design meaningful and implementable solutions for interdisciplinary person-centred care planning and delivery across the care continuum, using an Australian public health service as a case study.


Rebecca Barnden, Peninsula Health; Australia


Nadine Andrew, Monash University; Australia


Jo Hansen, Peninsula Health; Australia


(Part Four): Does mother know best?  A pilot study proactively assessing caregiver concern in the Paediatric Emergency Department.


A common theme after an adverse event involving a child is the parent reports, “I knew something was wrong, but nobody listened to me”.  Parents are experts on their own children, and it makes sense they might identify deterioration or serious illness earlier than Emergency Department (ED) clinicians.  We piloted a tool for proactive assessment of Caregiver Concern in the ED, with the aim to identify deteriorating paediatric patients at an earlier stage in their illness and reduce adverse patient safety outcomes.


Erin Mills, Monash Health; Australia


Liat Watson, Safer Care Victoria; Australia


Meg Harvey, Monash Health; Australia