B1: Co-designing in partnership with patients

Tuesday 16 May | 13:15-14:30

Format: Presentation
Stream: Safety
Content filters: Co-presented with patients, service users or carers

Session chair: Ian Leistikow, Inspector at the Dutch Health and Youth Care Inspectorate. Professor at Erasmus School of Health Policy & Management, Rotterdam, the Netherlands

PART ONE – Involving and working in partnership with patients in patient safety

We will briefly describe the priorities in the Framework for Involving Patients in Patient Safety published in 2021 and co-designed with patient representatives. The framework provides guidance on how the NHS can involve patients and their carers in their own safety, as well as being partners alongside staff in improving patient safety in NHS organisations.

We will describe how the framework is being implemented across the NHS and the approach being taken to train both staff and patients in patient involvement. 

A patient safety partner will describe their experience of working both in a local trust and at national level.

After this session, participants will be able to: 

  • Describe the approach taken to developing the framework with patient representatives and describe its main features

  • Appreciate how a patient safety partner is able to contribute to improving patient safety and the challenges they have faced

  • Understand the approach being taken to implementing the framework and the initial requirements for the NHS  

Joan Russell, NHS England, England

Douglas Findlay, volunteer for Royal Berkshire NHS Foundation Trust, England


PART TWO – Incorporating ‘restorative justice’ principles when engaging patients in learning after adverse events

In practice, open disclosure after an adverse event is often difficult because emotions of both patient and caregiver get in the way. There may be sadness, anger and denial. A more healing approach to restore trust can contribute to openness that allows patients and caregivers to learn from what has happened. In the wake of an incident, restorative practices ask who are impacted, what their needs are and whose obligation it is to meet those needs. The goal is to restore the system, to rebuild trust and to do whatever is needed to start the healing process. In this session two examples from daily practice in a general hospital are shared with you.

After this session, participants will be able to:

  • Understand when emotions hinder learning and the need to apply a more healing approach after adverse events

  • Be inspired by the examples of a general hospital and consider the implementation of restorative just culture in their own practice

Caroline Heijckmann, Bernhoven Hospital, The Netherlands